Tannine Montgomery says she has spent £34,000 and broken the law to keep her daughter alive.
Six-year-old Indie-Rose, from Clare in Suffolk, has severe epilepsy and can have up to 50 seizures a month without medical cannabis oil.
Since it was legalised two years ago, only a handful of NHS prescriptions have been issued.
The Department of Health and Social Care says more research is needed before it can be routinely prescribed.
Ms Montgomery says her daughter’s life has been transformed since she started taking medical cannabis three years ago.
“We went from constant seizures and being in hospital all the time to her being happy and attending school,” she says.
Read full story at https://www.bbc.com/news/uk-england-suffolk-55365116